Lowe Syndrome Trust Marks 10 Year Milestone with £1m Plan
Jonathan Ross, Lowe Syndrome Trust trustee, said: “I’m proud to have been involved with The Lowe Syndrome Trust since the beginning. The charity really has done amazing work in the last ten years, supporting families affected by Lowe Syndrome and funding vital research into a cure. We’re now encouraging everyone to get involved in our events for 2010, so we can raise a record amount and make it a truly memorable year for the charity.”
Lowe Syndrome affects thousands of boys worldwide, who are born with symptoms including cataracts, glaucoma, blindness, stunted growth, muscle weakness, rickets, scoliosis, arthritis, kidney problems, epilepsy and mental impairment. This leaves some children blind and unable to walk or talk. Sadly, few live to become adults.
Although the charity is still very small, in the past ten years it has raised hundreds of thousands of pounds and become the main fundraiser for research into this currently incurable disease. The new website at http://www.lowe10.com will promote the 2010 catalogue of events, enabling people to purchase tickets for events, bid for auction items, buy raffle tickets, raise sponsorship and make donations.
Lorraine Thomas, Trust chair, said: “The ten events for 2010 offer something for everyone, ranging from the Harry Potter film premiere to a black tie dinner at the Mayfair Hotel, and from a sponsored bike ride to jazz at Ronnie Scott’s. We’re also collating an anthology of poems which includes some very special celebrity contributions. Visitors to the website can enter a poem of up to 150 words for a £5 donation and we’ll select ten poems a month to go into the anthology, which will be published at the end of 2010.”
A Lowe Syndrome tenth year anniversary pre-launch event was recently held at the exclusive Mayfair Hotel in central London. Lowe Patron Tony Hadley, of Spandau Ballet, gave an intimate performance to supporters of the charity which included jazz musician Jamie Cullum and socialite Lisa Voice.
Supporters of the charity include patrons Penny Lancaster Stewart, Christopher Biggins, Sir Richard Desmond, Tom Conti, Melanie Sykes, Melanie Blatt, Sir Richard Sykes and Baroness Susan Greenfield.
For further information regarding Lowe Syndrome Trust tenth anniversary events and initiatives please contact Mark Emms on 0845 127 6676 or , or visit http://www.lowe10.com
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Notes for editors
FOR FURTHER INFORMATION REGARDING LOWE SYNDROME TRUST TENTH ANNIVERSARY EVENTS AND INITIATIVES PLEASE CONTACT:
Tel: 0845 127 6676
For general information about the Lowe Syndrome Trust, please contact:
Lorraine Thomas, chair, The Lowe Syndrome Trust
Tel: 0208 458 6791 / 07958 444020
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Jamie Cullum (jazz musician), Lorraine Thomas (founder and chair), Victoria Christian of Clive Christian, Tony Hadley of Spandau Ballet
(L-R) Lorraine Thomas (founder and chair), Rod Stewart, Penny Lancaster Stewart (patron) and Andrew Thomas. At a former Lowe Syndrome Trust fundraising event.